#me

You can see the dents in my face. Where my glasses sit. Geez I'm a nerd lol 😃🤦🏾‍♂️

My mind is imploding Neighbours leaving food at my door GP consultations by phone & SKYPE Pharmacy delivering meds Online messages/phone calls from old friends/past work colleagues Watch £s in plenty coming for biomed research into PVFS BUT Why did it take a global pandemic

Thank you so much Miranda Hart for talking about those of us with on your Instagram video today. Not only bringing awareness but talking with compassion and understanding about the condition. We aren’t used to that and so many of us are so grateful.

Today I confirmed cancellation of my last remaining ministry engagement for 2020 due to relapse. As a result I now have nothing behind which to hide other than my core identity as a loved child of God. Hard but good.

55yo farmer takes on 27yo daughter in a 15m sprint. After powering of the blocks his legs couldn’t catch up with his head

"If it can hit me, it can hit anyone!" That's exactly what people felled with have been saying for decades. Dr. Lipkin is a valued and much respected Researcher. We wish him a speedy and full recovery.

patients were never lazy, benefit scroungers, mistaken illness belief, attention seeking etc as some in authority tried 2portray We were the doers, the carers, the fixers, the hard workers, the unselfish we’re struggling to find ways 2help others from our beds now & we will

Sudden-onset-virally-induced doesn’t kill in a few days BUT it can render one bed/house bound&invisible for decades, until you die The massive mental health concerns we see now, abt self isolation-fear-anxiety-no effective treatment could have saved many from 5x suicide rate

Now is a perfect opportunity for govs 2warn of the importance of rest for COVID-19 victims who develop post-viral fatigue syndrome It could save millions more peop from developing &lifelong disability we have to endure through past ignorance The science is there now use it

People with go through all the stages of grief time and time again, one disappointment after another. Hearts are shattered and the world doesn’t know as we are hidden. Researchers are few and underfunded. Living deaths in darkened rooms

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